Tuesday, May 31, 2011

Intro/Day 1

Hi guys, I thought id make a blog to kinda explain whats going on with me.  Well for starts for all those who dont exactly know me or whats up with me, Im Abi Schurer and I have RND. RND stands for Reflexive Neurovascular Dystrophy and its a painful disorder. Basically it is a problem with my body that makes it hurt severely when nothing is actually wrong and it makes my real pain worse. A good example is if someone kicks you in the shin and it hurts well take that pain and multiply it about 10 times and that's how much it would hurt me. I was diagnosed by Dr. Rosen on February 14th, 2011 (Happy Valentines Day to me!) Iv been to a ton of doctors and they never figured this out until now. My condition really affects my life in many ways. Ive missed a ton of school and am teaching myself a couple classes. I also have a ton of trouble falling asleep and staying asleep so i get about 5 hours of sleep a night. And for all my friends and my loving boyfriend who read this yeah its affecting us. It makes me scared and worried and i never want to do anything but i promise that will change. Its a very rare condition and there are only 4 treatment centers in the country so I'm very lucky that i live very close to one, The Childrens Institute of Pittsburgh. So now that you have the basics on me and my condition I'm gonna tell you bout my day. Well we started bright and early at 8 when i was admitted. I had admission exams then at 9 I started my therapy. Iv met some amazing girls who are also in the program and the therapists are so nice. I had 3 hours of physical therapy, 2 hours of psych therapy, 2 of occupational therapy, and 1 hour of pool therapy. Very long day so I'm chilling with my mom in my room (I currently don't have a roommate:p) I hope to see a bunch of people while I'm here and i miss you all! Il try to post everyday soo peace:)<3