Day 13

Wow I'm so bad at remembering to do this every night haha:) Well today (yesterday I guess...) was pretty good. I had an off day so I went to the Strawberry Days festival in Grove City. Then I went home and my amazing boyfriend came over and I had an awesome night with him:) Then some stuff happened that just broke my heart...but its all fixed now:) I'm almost donee:) Only 2 more dayss:) Well got to go so I will see everyone in a few days:):)<3

Day 12

Hey guys this is late I know but I'm ding it anyways...Today was really easy cause it was only a half day. I had 1 hour of OT and 1 hour of PT. I beat my last animal walk so I'm done with those:) I'm going out to a dinner/movie/pedicure with my Nana tonight. Well it was an easy day so theres not much else to say so talk to you all later:)

Day 11

Heyy:) Awesome day today:) 7 hours of sleep:):) I beat the shuttle run today so I'm done with that time trial and I only have one left for PT. My hands are really weak and get tired too fast so we did that in OT. I got some theraputty which helps strengthens them. I also had to write for 10 minutes and that was so so so hard for me. I also got some sweet orange arometherapy which should help me relax:) I cat wait to come home on Tuesday:):) Well today I was by myself for "group" because K left today. So Im by myself till Monday when another RND girl comes in and then another comes in on Wednesday. My weekend is gonna be pretty fun. Oh and this evening was so much fun, my friend and amazingg:) boyfriend came up to see me and it was a party;) Well Im going to bed soon so Il talk to you all tomorrow byee:)<3<3

Day 10

Hey guys. Today was rough. I got almost 10 hours of sleep last night:):):) That has been the best Iv slept in almost a year. Time trials were pretty bad today, I really had trouble beating some of them. I had a little breakdown which was my first but it was bad...I saw my mom today at lunch time and she helped me through it. Then we had groups which were fun:) We dougied in PT group which was awesome. Then we put 25 pound weights in our backpacks and walked a 4 block square...major hardness. Umm pool was fun too. Oh then I got moved into Ks room for the rest of my stay cause they needed my room for the 2 new babies that are coming tomorrow. My mom came up around 6 to say goodbye (the whole family is going to New York for the weekend for a wedding:/ ) Then a friend came up and chilled for a while but tomorrow my amazingly sweet boyfriend is coming around 2 and were gonna hang out here for a while. I have some awesome plans for the weekend so I'm excited:) Got to go take my medicine so I will fall asleep soon so goodnight:)<3

Day 9

Hey guys:) the countdown has started for when I'm coming home! Only 6 days!! I miss you all and cant wait to see everyone! Well I beat 2 more of my animal walks so I'm done with 4 of them and I just have 2 more! I beat all of my other times (right step-ups took 3 tries), which is awesome:) L left today which is sooo depressing, I really looked up to her. I had lunch with my daddy today which was very entertaining then I had my group stuff and pool which was lonely but sooo much fun. We had a sub (like usual cause Chris is out for vacation) so we just did some laps then did basketball and diving for rings. I chilled after that then around 7 my daddy came and we went to Wendys for dinner then came here and watched the CMT Awards...I forgot to take my medicine so I just got it so I'm major tired so Il talk to you all later love to all goodnight!:)<3

Morning of Day 9

good morning everyonee. Last night was okay i guess, sleep wasn't too bad. Umm therapy looks pretty normal for today, the usual 5 hours. L is leaving today which is very depressing, she has really taught me a lot. My daddy is coming down for lunch today and I'm really not sure whats going on tonight. Umm yeahh my posts are getting pretty boring because Iv really fallen into a rhythm now and theres really nothing new. sorryy:/ So yeah I'm probs gonna go get breakfast and get ready for the day. Talk to you all later!!

Day 8

hey everyone, first of, L and K say heyy:) We just had a chill night so that was awesome. We painted and took a million pixss then facetimed my love<3 Oh and C left:( that was sooo sad:( I never thought I could grow so close to someone in less then a week. Today was pretty cool and not too hard. I had biofeedback which was hard but relaxing. My madre came in to see my exercises and I really hope that that will make her understand what Im going through. I beat all of my time trials and tied out 2 of them so I dont have to do those anymore:) Oh and the little kids came up with my mom for family swim night so yeah that was pretty fun...Umm I dont really have anything else to say...Umm sleep is pretty bad so Im gonna try early..goodnight everyone(:

Morning of Day 8

Well guys this is the mark of the first week that I have been here. Iv learned so much just from my therapies and especially from the girls in the program. I will miss all of the friends that I have made here so much. I really hope I can meet up with them later in life to connect. Well C is leaving today and then L is tomorrow and finally K is discharging on Friday. I cant use names just for privacy but the meaning is still there. Well even with that new medicine, I had a pretty rough night. I fell asleep around 11:30 and got up a couple times and finally got up around 7. I have a packed day so I'm gonna go get a start on that. Only 7 days till I come home!! Lots of love to all byee:)<3

Day 7

Ughh guys im failing you! I keep forgetting to post! Haha no there really isnt anything interesting going on....umm well today I beat all my time trials and animals walks except the crab which I beat on the second try. Tomorrow I have biofeedback which is really cool to do. My mom will be at my morning sessions so I can really show her what I can do and what I am learning here. Then lunch group:):) The girls here are amazinggg and so much fun. We had a girls night out (pizza and movie in one of our rooms). It was soooo fun haha:) I really am going to miss these girls when THEY ALL LEAVE ME HERE BY MYSELF THIS WEEK;) Haha I will be fine thou:) I left at one today to go to the dentist:/ But then I went to get my new IPad and ended up with a MacBook Pro:):):) I love this thing with a new burning passion haha. Well some bad news is my RND pain has spread to my right hand making writing, typing, texting, twirling my flag, and bunches of other things really really hard. I was up last night from 12 till 4 so I got a new sleeping medicine and were gonna see if that helps so Im gonna go, goodnight everyone:)<3

Day 6

Hey everyone sorry I didn't post this morning. I was dead tired from the storms last night. This horrible storm came in around 1 and it was just really bad this horrible thunder came and woke up all the babies on the floor...so that was really bad...haha so today was an off day so I got picked up at around 9:30 and had an awesome day at home. We did a ton of garden work then my darling boyfriend came over to swim and watch Harry Potter 2:) Well tomorrow should be a normal morning then I'm leaving around 1 to go to the dentist. Then after the stupid dentist (haha) I'm going to get my new IPad:) After I come back, the RND girls are having a pizza/movie nightt!! That will be awesome. Well I'm skyping so I will talk to you all later, byee:)

Day 5

Hey everyone, I got back really late so this is gonna be short. Umm I only had 2 hours of therapy today which was awesome:) My mom, 2 sisters, and brother came up for lunch in the playground. Then I went home and had my amazing boyfriend over to swim and have a fire with the little ones. That fire might have changed my life. Haha well I will be home tomorrow and the boyfriends coming over (obviously haha) but if you want to hang just hit me up and I will try to work something out. Love to all:) goodnight!!

Morning of Day 5

Well guys, I survived another night. I got a record number of 7 hours of sleep which hasn't happened in a really long time. Today is (obviously) Saturday so that means a half day of therapy:) I'm going home this evening and will be home all day tomorrow:) Well I don't really have anything left to say so talk to you all later:)<3

Day 4

Hey everyone:) Today is day 4 and Im off and running. It was a long hard day that tested me, both mentally and physically. I did beat all of my times for time trials which is awesome. I did get some blisters from my animal walks (some time trials). Those hurt...a lot. Well the rest of the day went well. I found out that all three of the other RND girls are leaving next week so Il be the trainer for the new ones haha:) I will definitely miss them though. I should be discharging on the 14th!! i found out that today:) I'm so ready to go home. So on to my mental challenges...i was tested by friendships and family and I got some awesome advice that I'm definitely going to take to heart. Many people don't realize that this treatment has a hugeee mental part of it. Its really hard getting through this but I know I have everyone around me...the unfortunate thing is that I still feel so alone and I'm really not sure why but I'm sure that this treatment will fix it:) Well I miss you all so much but I do have to go because I'm still working on my night exercises soo goodnight:)<3

Morning of Day 4

Hey guys I made it to day 4! Haha no really its been hard but Iv heard that this is nothing yet. I was given a vitamin last night to help me sleep and it really helped. I fell asleep around 10 which is great for me then I woke up a couple times from dreams...I'm not sure whats with the bad dreams cause they never happen at home...and got up and moving around 7:30, got vitals taken, got my schedule, and got breakfast. I have biofeedback this morning. Biofeedback is a program (actually a game) that I get hooked up to and I have to relax and energize my body to get through the different tasks and levels. That should be pretty fun. Well what else...oh my mom is coming down for lunch and bringing Chinese:) Then I'm going home for the Ultimate parties tonight but then Il be back:/ Cant wait to come home and see you all! Lots of love! byee:)

Day 3

Whats up guys? Today was a pretty normal day it was really hard thou...i beat all of my time trials which is one of the hardest things to do here. Pool was actually really fun we did some knee laps then kick boards and then finished with some really fun stuff:) We had lunch group today so that was pretty fun, i got to hang with the other girls in the RND program. They are soo much fun and so inspiring to be around:) Oh yeah before i forget i got a question about when I'm coming home. I really don't know yet but there is a meeting tomorrow that will give me an idea. I'm thinking i will be out in 2 or 3 weeks hopefully. So today after therapy i went down to the Waterfront with my nana to do some shopping:) I will be home tomorrow evening and Saturday afternoon and all day Sunday so if someone wants to visit just let me know. Oh and if anyone wants to visit just txt me or message me on Facebook and il set up a time:) I miss you all like a lot and obviously i apologize to those 2 couples whose weddings i will be missing. I'm sure they will be wonderful and the best of luck to you all! Well I'm gonna go so il talk to you all laterr byee:)

Morning of Day 3

Good morning everyone. Last night was rough...fell asleep around 11 which was great but had nightmares:( those were pretty bad so i woke up twice from those...umm I'm very very sore i could barely stand up this morning haha that's to be expected though. Therapies look normal for today, nice and hard:) Well that's really all i have for my morning post so cya:)

Day 2

Hey everyone, i miss you all! I'm doing great and thanks to all for the get wells:) To answer the question about visitors, yes i can have them. Visiting hours are from 4-9 for weekdays, 12-9 on Saturday, and all day on Sunday. So on to my day. I was up bright and early at 6:30 but didn't start therapy at 9. I had the normal schedule of 2 PT hours, 2 OT hours, 1 of pool, and an hour of psych. The just keep getting harder haha. I think i ran a total of like 7 miles today...very difficult for me. I starting some of my time trials this morning. Time trials are exercises that i have to do everyday and then the next day i have to do it again and again until i can beat my time. Iv heard that the 3rd and 4th days are the worst but I'm sore already! My mom came down to see me at lunch then my daddy and awesome boyfriend came down to take me to dinner and home to visit for a couple of hours. I'm really hoping to see everyone while I'm down here and plan on having a big PARTY  when i come home:) Well I'm sooo tired so I'm gonna go to bed now so il post in the morning love you all so much goodnightt:)<3<3<3

Morning of Day 2

Well its the morning of day 2 and the night was rough. I fell asleep around 2 woke up around 630 and couldn't go back to sleep. I'm not sure whats in store for today but i know its gonna work me. I started my evaluations in OT and PT yesterday and only finished the PT one so I'm gonna finish up the OT one and get into the really fun (not) stuff. I'm pretty sure that I have pool time today too so that's gonna be interesting haha. Well I have to go now so i can start my fun-filled day. Byyee:)

Intro/Day 1

Hi guys, I thought id make a blog to kinda explain whats going on with me.  Well for starts for all those who dont exactly know me or whats up with me, Im Abi Schurer and I have RND. RND stands for Reflexive Neurovascular Dystrophy and its a painful disorder. Basically it is a problem with my body that makes it hurt severely when nothing is actually wrong and it makes my real pain worse. A good example is if someone kicks you in the shin and it hurts well take that pain and multiply it about 10 times and that's how much it would hurt me. I was diagnosed by Dr. Rosen on February 14th, 2011 (Happy Valentines Day to me!) Iv been to a ton of doctors and they never figured this out until now. My condition really affects my life in many ways. Ive missed a ton of school and am teaching myself a couple classes. I also have a ton of trouble falling asleep and staying asleep so i get about 5 hours of sleep a night. And for all my friends and my loving boyfriend who read this yeah its affecting us. It makes me scared and worried and i never want to do anything but i promise that will change. Its a very rare condition and there are only 4 treatment centers in the country so I'm very lucky that i live very close to one, The Childrens Institute of Pittsburgh. So now that you have the basics on me and my condition I'm gonna tell you bout my day. Well we started bright and early at 8 when i was admitted. I had admission exams then at 9 I started my therapy. Iv met some amazing girls who are also in the program and the therapists are so nice. I had 3 hours of physical therapy, 2 hours of psych therapy, 2 of occupational therapy, and 1 hour of pool therapy. Very long day so I'm chilling with my mom in my room (I currently don't have a roommate:p) I hope to see a bunch of people while I'm here and i miss you all! Il try to post everyday soo peace:)<3